Hello To One and All.
It has been awhile since last post. So much as happened. A journey in the making. Do you look
for the rose among the thorns? Do you see the vines?
Vines are climbing so many thorns and then a rose.
A prize.
Life is somewhat that way. You want the best for your child whether you have one or more. Whether it is a school that has all the right programs, the best ball team, the best doctor that you have been told can fix the unfixable. Then the journey begins.
Tiffany had her second surgery in five months with Pamplanoma. Not good. Looking for roses through the thorns. Home more. Sleep less. Rainbows on the really bad days.
Hope always hope. God has shown me so much during this year long road of this trial of illness.
Rare and aggressive. No connecting between William's Syndrome and Pampanoma.
So we look for the rose among the thorns and smile when it is found and cry on other days.
Look for the good. Remember God is always in the front, back, above and below.
God Bless,
Theresa McGuyer
Accept NO Boundaries!
A Support Group Blog for Special Needs Parents, Grand-Parents and anyone that is a care-taker of any age and any disability.
Thursday, April 14, 2016
Wednesday, July 30, 2014
Over Load
Hello!
What a month or so!! How many layers do you have? Sometimes I feel a very heavy load to bear. So pulled from here to there. Love my children but the care for them is a lot.
Tiffany is being weaned off of Vim pat for seizures because of the side effects are not good. Is this the right decision? Yes because we are having chemical seizures and not electrical seizures. according to nuro doctor harder to treat.
So here we go again.
We are blessed because she is still here. And thankful. So glad to be her mom. Sometimes I wonder are we (her father and I) doing enough? WHY can the doctors see what we know? They are not God. He hung the moon and stars. So grateful He did and I didn't.
I want the best for her. She hurts we tell the doctors where and the tests are normal. She still hurts. And God begins the healing process.
Wanted this site to be happy and uplifting but life happens and need to share. We have great days and not so great days and that is the way the story goes.
It seems challenges happen at once. Not just one but multiplies. That is what keeps the world spinning.
Sometimes you just have to have a few minutes or a couple of hours to be by yourself to regroup or recharge. I did last night. It helped. Prayer is helping.
God is helping, Tiffany laughed yesterday. A great sound that has been missed. May we all have more laughter in our lives.
Love being a wife, mom, nanee, Realtor and this support group.
Life gets busy.
May God bless us all,
Theresa McGuyer
What a month or so!! How many layers do you have? Sometimes I feel a very heavy load to bear. So pulled from here to there. Love my children but the care for them is a lot.
Tiffany is being weaned off of Vim pat for seizures because of the side effects are not good. Is this the right decision? Yes because we are having chemical seizures and not electrical seizures. according to nuro doctor harder to treat.
So here we go again.
We are blessed because she is still here. And thankful. So glad to be her mom. Sometimes I wonder are we (her father and I) doing enough? WHY can the doctors see what we know? They are not God. He hung the moon and stars. So grateful He did and I didn't.
I want the best for her. She hurts we tell the doctors where and the tests are normal. She still hurts. And God begins the healing process.
Wanted this site to be happy and uplifting but life happens and need to share. We have great days and not so great days and that is the way the story goes.
It seems challenges happen at once. Not just one but multiplies. That is what keeps the world spinning.
Sometimes you just have to have a few minutes or a couple of hours to be by yourself to regroup or recharge. I did last night. It helped. Prayer is helping.
God is helping, Tiffany laughed yesterday. A great sound that has been missed. May we all have more laughter in our lives.
Love being a wife, mom, nanee, Realtor and this support group.
Life gets busy.
May God bless us all,
Theresa McGuyer
Sunday, April 27, 2014
Friday, December 6, 2013
Reflections
How is everyone doing? Today is a raining sort of day.
Down comes the rain or teardrops? Life is a maze that
has to be traveled. This trail is full of laughter and that
trail is full of heartache and tears. Which way will it
go today?
Sitting at home. Have been trying to get on the blog, email,
or Face book and Tonya has been so good to change
passwords and I would still get it wrong. Surprise surprise
there was a dot instead of @. How do we miss the little
things in life? The hugs of loved ones gone to soon by
our timing not God's. The encouraging words, the flowers
that are not blooming now because it is the wrong season.
We will start back meeting in January on the
30th at 6:30. Launch Point Church in Tuscumbia.
Also we will be trying Skype for the ones that are
not able to attend but have internet access. The email
and Facebook are also still active.
Please keep us in your prayers to say and do the
right things.
God bless always,
Theresa McGuyer
Down comes the rain or teardrops? Life is a maze that
has to be traveled. This trail is full of laughter and that
trail is full of heartache and tears. Which way will it
go today?
Sitting at home. Have been trying to get on the blog, email,
or Face book and Tonya has been so good to change
passwords and I would still get it wrong. Surprise surprise
there was a dot instead of @. How do we miss the little
things in life? The hugs of loved ones gone to soon by
our timing not God's. The encouraging words, the flowers
that are not blooming now because it is the wrong season.
We will start back meeting in January on the
30th at 6:30. Launch Point Church in Tuscumbia.
Also we will be trying Skype for the ones that are
not able to attend but have internet access. The email
and Facebook are also still active.
Please keep us in your prayers to say and do the
right things.
God bless always,
Theresa McGuyer
Sunday, July 14, 2013
Hello to one and all!!
I know it has been awhile since we have
been on our site. Many apologies for the
inconvenience or thinking we may have canceled.
Tonya and I have had to be moms with our
children. Surgeries and disorders have kept
us busy. We still have access to your emails
and web sites so we can respond to you personally.
This life is so busy. Never dull. Tiffany had her esophagus
stretched on Friday. We have had a slow weekend. Good outlook for long term recovery. Still not able to eat everything
good.
Have you had days where you wanted to give words of encouragement but couldn't? So much to say but can't get from
brain to keystrokes.
Everyone have a good week. Please keep us in your prayers.
We are still meeting at Launch Point Church.
Last Thursday of every month at 6:30 p.m.
God bless all Theresa McGuyer
I know it has been awhile since we have
been on our site. Many apologies for the
inconvenience or thinking we may have canceled.
Tonya and I have had to be moms with our
children. Surgeries and disorders have kept
us busy. We still have access to your emails
and web sites so we can respond to you personally.
This life is so busy. Never dull. Tiffany had her esophagus
stretched on Friday. We have had a slow weekend. Good outlook for long term recovery. Still not able to eat everything
good.
Have you had days where you wanted to give words of encouragement but couldn't? So much to say but can't get from
brain to keystrokes.
Everyone have a good week. Please keep us in your prayers.
We are still meeting at Launch Point Church.
Last Thursday of every month at 6:30 p.m.
God bless all Theresa McGuyer
Tuesday, March 5, 2013
Exciting Times
It was a great day. It rained. Much laughter.
God opened a great door. We were interviewed at
the radio station WZZA. Tory did a wonderful job
making the interview go smoothly.
Hope it reached a heart that needed to hear
our journey. So many people with needs and burdens.
Each day is a brand new day. So much to learn
and share.
This is a woooooohooooooo day as my
granddaughter would say.
Theresa McGuyer
Monday, March 4, 2013
Need Ideas
Hello! Hope this finds everyone doing well or
at least better than yesterday! Every day is a brand
new day with new challenges and new insights.
On Thursday stress level was very high.
Hoping to get thoughts ready, refreshments together,
information ready, and clothes together. (Had to
work and no time to go home and get ready. So
freshen up at church. Haha.) While waiting for
time to start the meeting the alarm went off because
of not keying in enough numbers. Loud alarm. Called
alarm company so the police wouldn't come. So much
to laugh about.
Very good meeting. Young mother keeping the
faith but not sure of what to do next. We were able
to answer her questions and pray with her. She
encouraged us as well. Stress level went down as
we talked as mothers and friends. Sometimes that
is all that is needed. Someone to laugh with, cry with,
and just be accepted.
Keep us in your prayers. We need to
make the right decisions.
We are to be interviewed on March 5, 2013 at 9:00 am on the radio station
WZZA.
We would like to thank WZZA and WQLT
and her sister stations for advertising for us. It is
so appreciated.
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